As your child grows into a young adult, you will, like all parents, want to equip them with the skills they’ll need to engage with the world.

Many people with 22q11 have difficulty with concepts, such as time, space and maths, as well as forward planning and understanding visual cues. These can cause day-to-day difficulties in meeting appointments, processing information and managing money. However, in our experience, many young adults with 22q11 are very skilled in using technology, and in particular, social media, and that has become an important tool for them as they grow and engage with the wider world.

Young adults with 22q11 can be more susceptible to mental health issues, in addition to long-term physical health problems, but being aware of the prevalence of these can aid in early intervention that can, in turn, help families avoid some of the more severe problems.

Our shared experience can help guide other families through these challenges. In addition to their valuable insight, the YEEP group often interact with each other online or meet in a social or workshop environment. This helps them gain vital support from each other, as well as their families and friends.

Contact us any time to find out more about the YEEP group, to share your concerns, or to hear from other parents who are living with 22q11, just like you.